Carmen had a good night, a bit uncomfortable with the PICC line in her arm. She had over 101 fever which the nurse and I controlled with Tylonal. I am the oral meds dispenser right now.
She woke up smiling and meowing which was Awesome!!! She ate a bit of an apple, hard boiled egg and now cheerios. She didn't like the hospital apple...the food is abysmal....need to get some on the outside.
Great news today!!! Her infection in her blood is 99% gone!!! Hopefully she can get up, walking and go to the playroom soon. We need to get her bathed and into her clothes today. Got a bag of toys/supplies from Chris Spencer who came over last night from Kauai. Chris and his father did a blessing on Carmen's body....it was wonderful.
Chemotherapy treatment will begin Tuesday morning.
I began reading "Childhood Leukemia" by Nancy Keene - a must read for all of us involved. Please get it if you can.
Chris started this blog last night so we can keep a journal on everything happening to Carmen.
I will add more when I get my computer next week.
Finally....I wanted to thank everyone for your support and offers of help. We will need it all....we just do not know quit yet what we need.
Much love,
Heather
Our Sweet Angel
Saturday, May 28, 2011
One Day at a Time
Either we have never felt that anything we had to say was important enough to tell the world via "Blogging" - or - we were able to share what we needed to share with the people closest to us without the need of a blog.
Regardless of the reason, when we found out yesterday that our sweet baby daughter was diagnosed with Leukemia, Heather and I have felt the need to communicate on a broader level to our friends and family.
The expression, "living one day at a time" has never been so clear as it is this very moment.
Getting Carmen better is all that matters to our little family. All we want is to see our baby girl swimming in the ocean and chasing her brother at the beach.
Not only is Carmen Leolani the sweetest, most adorable little girl but she is also strong and determined. We are so proud of her strength during this scary time.
The gracious support from our friends and family over the last day has been overwhelming. We welcome all of your support, advice, prayers and well wishes.
To be perfectly honest, this is all so sudden that we do not know what sort of help to ask for but we appreciate everyone.
Heather and I will do our best to keep this "blog" updated so you can share in Carmen's journey towards full recovery.
We love you all,
Team White
Regardless of the reason, when we found out yesterday that our sweet baby daughter was diagnosed with Leukemia, Heather and I have felt the need to communicate on a broader level to our friends and family.
The expression, "living one day at a time" has never been so clear as it is this very moment.
Getting Carmen better is all that matters to our little family. All we want is to see our baby girl swimming in the ocean and chasing her brother at the beach.
Not only is Carmen Leolani the sweetest, most adorable little girl but she is also strong and determined. We are so proud of her strength during this scary time.
The gracious support from our friends and family over the last day has been overwhelming. We welcome all of your support, advice, prayers and well wishes.
To be perfectly honest, this is all so sudden that we do not know what sort of help to ask for but we appreciate everyone.
Heather and I will do our best to keep this "blog" updated so you can share in Carmen's journey towards full recovery.
We love you all,
Team White
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